Does anyone have a solution to help manage Reclast side effects?

@dannyandebbie
Luckily, I have never had an issue with receiving RELCAST. I get enough bruising from being on blood thinners. Are you on blood thinners? I have three stints which require blood thinning. It does not help that I'm a Type 1 Diabetic utilizing an insulin pump. Every time I replace an infusion set (24-48 hours) I get a large black and blue mark. Good luck Danny & Debbie.

@wmelenitsky no! I am not on blood thinners; just figured it’s part of our aging process. Being 69 I felt was a little early for signs like easily bruising but were becoming more like a ripe fruit as we age and need to be handled with care, Right? Ha! Ha! Hopefully others that have received Reclast will weigh in on this topic, would be interesting to know! Best of luck!

@jozer there are great pharmacist out there that have zero problem helping one figure what medication to take and how they mix with other medication! It is sad that so much is based on the dollar; hopefully you find a pharmacist to help you out! Best of luck

This is my one year anniversary of getting Reclast. My story is a horrible one. After no issues after the infusion and two months later I unfortunately got the many side effects that are listed on Mayo Clinic’s list. They are awful. Stomach pain, vision loss, joint and muscle pain, huge weight gains, hair loss and so much fatigue. It’s ruined my life. My life. 67 years old. Before Reclast I was a happy healthy active woman. I don’t see my kids or grandkids anymore. Been to tons of doctors and psychiatrists and no one can help me. I ask God why? What did I do to deserve this? When or if it will all go away? I blame me. I blame the doctors and the drug company. I know this drug has been helped many people but for me my life is ruined. And records show that the drug stays in you for 10 years. So 9 more to go. If I last that long.

@lwidstrand you will last! It’s Will Power! You need to start seeing the family members again! While visiting family members try to limit your complaints. Observe what others are doing and going through and offer support where you can….all these symptoms have hit you hard, yes, but you are the one in control here, not the Reclast! Each day, upon waking up, try to focus on the way things use to be and what little step can you take to put you back on that track! I have to tell myself daily that I am in control. There are days it truly sucks but I try hard to not let that symptom to control my day. If I feel nauseated, I just don’t consume anything at this time. If my shoulders are really hurting I try to do something that don’t rely so much on my shoulders. However, I do go to physical therapy bi-weekly and try to exercise daily; self discipline at times is required. Try to look at things positive manner, our minds are powerful, we provide it with positive thoughts and hopefully we start feeling better! Best of luck!

Are you kidding me?! I Do Not complain to family members about my symptoms!! My stomach Pain is real not something I can think away. Will power? So my joint and muscle pain are not real? I feel like a 96 year old. I don’t want to feel this way. I don’t burden my family about this Alien in my body. I sit in my recliner with a heating pad on my stomach all day. You think I want this? I appreciate your thoughts but I’m not there. Please keep your insane opinions to yourself. Not helpful at all.

@lwidstrand
I’m so sorry for what you’re going through.
Did you report your symptoms/ reaction to the FDA? Or the drug company? I believe that they are not publishing the “real” side effects of this drug. And there’s little to none follow up from the providers suggesting it as a solution to osteoporosis.
I’m in constant pain on my ribs.
I hope you can try to do some exercises to relieve the pain.

I am nearing the end of my two year Forteo therapy. I will have my DEXA scan in April, followed by appointment with my endocrinologist. She has already suggested that I will transition to RECLAST and I am now following the comments on this site. This is very discouraging, so many problems with Recast posted here.
Before starting Forteo, I researched for six months, gaining a lot of my information from this site. I have been very surprised and I guess fortunate that the Forteo experience has been just fine for me. No side effects, just the hassle of daily injections. I won't know if it's been effective, however, until the scan results.
In the meantime, I'll keep researching but right now I am extremely reluctant to begin Reclast and there aren't a lot of good alternatives. (age 75, active with the normal aches & pains of this age)

Reclast….never again. It’s horrible if you experience the side effects. Luckily mine only lasted 10 days but they were brutal. Horrible joint pain, vomiting and exhausted. I’m just going to take calcium and Vit D daily. That’s my treatment.

@kar50, when you stop Forteo the cells that remove older bone will drop more significantly than the cells that add bone. Alendronate or Risidronate are probably strong enough to maintain the gains on Forteo. But you could keep track of the change with bone markers CTX and P1NP.
Reclast is probably too large a dose for most of us. They do know that 4mg is as effective as Reclast's 5mg. You could ask for zoledronate which is easier to get in a lower dose. Also, Reclast is thought to be effective for two years for most people.
The side effects can be overwhelming, it seems especially for those with other autoimmune systems. If you decide on Reclast be sure and ask your prescribing doctor to write for a longer infusion 30 min to an hour. It's easier on your kidneys.