Connect
← Return to Rheumatoid arthritis: How do you cope day to day?
Discussion
Rheumatoid arthritis: How do you cope day to day?
Autoimmune Diseases | Last Active: Apr 18 6:41am | Replies (92)Comment receiving replies
@susanlf
Hi Susan. Good luck with your results and your appointment with the endocrinologist. It is so frustrating and disheartening when the the doctors do not have answers. I hope you get some relief from your pain soon.
It is so difficult when you are on medications that don't relieve pain, which in fact leave you feeling worse. I understand as I have been there. I am still in search of a doctor who can tell me what my diagnosis is !
I have mild hypogammaglogulinemia, but otherwise my bloodwork is normal. I have fibromyalgia, off and on widespread pain to different joints and muscles throughout my body. I developed hypothyroid at 40. Just this past Dec. had a right hemicolectomy. Cancer was found in my caecum. Luckily it was found early after me complaining to doctors for 2 1/2 years. Pet scan clear so no chemo or radiation. So I am very grateful for that. With the way I am feeling I have no doubt that there is something autoimmune going on in my body but I have not been given any answers. My immunologist is monitoring me but I am at a loss as to what to do next. With my ANa and sed. rate and CRP all within normal my PCP has not referred me to a rheumatologist. I'm thinking that is my next step.
Replies to "@susanlf Hi Susan. Good luck with your results and your appointment with the endocrinologist. It is..."
Connect
@leanne004 I sympathize with all you're going through. It's a pretty wild ride. In my experience, it does take a rheumatologist, and a good one at that, to diagnose. One doctor, an orthopedic surgeon I was seeing about getting a shoulder replacement, thought I had a ganglion cyst on my wrist. He didn't even notice that my entire hand was swollen like a baseball glove, I later found that's a classic sign of psoriatic arthritis. (I ended up choosing a different surgeon, haha). The rheumatologist recognized it just by looking. It's so good to have a diagnosis and to know what you're dealing with. I do hope you find the answers you need. Kind regards, LL