← Return to Do late effects of sinus radiation contribute to TBI/concussion?

Discussion
Comment receiving replies
Profile picture for Sue, Volunteer Mentor @sepdvm

Hello @ponygirlnd, I had radiation directed at base of one ear for SCC 13 years ago at University of Michigan. The old radiation oncologist (head and neck specialist) at the time said I would have some memory loss as the primary brain injury from the photon radiation to certain areas affected. At the age of 72 it is hard to know what was radiation and what may be just age. New radiation "gifts" this year are neck fibrosis and facial and neck muscle atrophy, which I am addressing with my Mayo team next week. Since my surgery involved removal of much of the temporal bone of the skull, dizziness and balance were a big challenge back then. The medical staff....mostly the great nurses.....kept telling me that we can retrain the brain, create new pathways, and cause improvement. Nerve tissue is slow to heal though, and it took time, but by challenging myself physically I have overcome many of the issues. I don't know if you have had any therapy or had discussions with your medical team about this because we can lose touch with them over the years, but can you pursue it? I also recommend reading about Lion's Mane mushrooms for nerve growth and repair. I think that supplement has helped me.

Jump to this post


Replies to "Hello @ponygirlnd, I had radiation directed at base of one ear for SCC 13 years ago..."

@sepdvm
There is so much in your post that is helpful to others. I had to reply because I also talk about "radiation gifts"! We have to keep finding humor! Because all that you talk about that is loss and/or healing takes work. I had surgery and radiation 30 years ago and have daily talks with those gifts. I also have neck fibrosis and facial and neck muscle atrophy. Just today I noticed in a picture that my face/mouth droops which is new. Tomorrow I'll schedule an appointment with my ENT.
Honestly, I never thought I'd get so much from this particular support group but it's been good for me to identify these ongoing changes from radiation.