@alexa2020 My husband is currently battling with Huntington's disease. He is the first in his line to be diagnosed, but based on symptoms before death we were able to trace it back. It's difficult trying to help the next generation (my kids, nieces and nephews) with resources if they choose to be tested. My husband had one sibling who died with similar symptoms but was not diagnosed. It took many years of symptoms, dealing with multiple doctors before someone finally pointed us in the right direction for a diagnosis. There's also research giving hope to eventually having a cure, but too late for my husband. Fortunately we have an excellent care team that has helped with symptoms. It sounds like you are helping others, Thank you. We were told this is considered a rare disease, but based on the 50-50 genetics and our family history I believe it under-diagnosed.