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More on Supplements and “Natural”

Osteoporosis & Bone Health | Last Active: Mar 9 10:16am | Replies (20)

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@beachesanddreams thanks. I appreciate that. I think I come from a different perspective with three autoimmune diseases or conditions, either terminology. I was DX with my first one which is very rare over 15 years ago, with only one medication. Autoimmune diseases tend to run in packs and my rheumatologist was actually really surprised it took 10 years for the others to come on. The rare one is often silent at first. The others much more symptomatic. The most recent one is also quite rare, only a few specialists here and there and also tiny pool of meds. So this is all a long winded way of saying because OP is silent until a fracture, I agree that people tend to ignore. And big mistake! I’m thrilled to be taking a bone builder now, so glad I had that option and got ahead of it. I think you are right, people will look back when they fracture with regrets and a much scarier future. But because I have experienced really scary stuff I just took it more or less in stride. I knew when I was DX with RA (and that is very painful and life altering) if I didn’t get ahead of that asap I would be in horrible shape. When I started treatment I couldn’t dress myself. Now am doing great. I look at friends who had cancer. I can’t see any of us saying “oh I want to treat this ‘naturally’”. When that basically doesn’t exist anyway. People afraid of hormones in anabolics but they have no trouble popping a NSAID? Sorry not “natural”. Anyway, I think all my experience plus the fact I live with all types of up and down issues like all autoimmune patients, a racing heart for a half hour is NOTHING. So because of all that I am also not hyper focused on what I feel. Just get on with it. And the irony is, lol, because of the anti inflammatory properties of my anabolic I feel great! So not trying to be dismissive of people’s side effects but I do think going into this with a super positive, grateful attitude helped and has been like, pfft, piece of cake. When you’re at a place where you can’t dress yourself where I was with RA a little X or Y seems easy. Keep hanging in there. I will pop in here and there but found it incredibly frustrating with the “natural” talk. Cheers.

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Replies to "@beachesanddreams thanks. I appreciate that. I think I come from a different perspective with three autoimmune..."

@ccps101 Thank you so much for sharing your journey and information/experience. I also have autipoimune disorder and grateful for anabolic bone builder. Forteo worked well for me and now Teriperitide for a booster. May I ask you which anabolic medication you choose and what you will take for maintenance afterwards?

@ccps101,

Thank you for sharing your experience, as well as your caution to other members about consulting with their providers before making any serious alterations to their medication or supplements regimen. Unfortunately, Osteoporosis is a diagnosis that has many pitfalls in regards to "snake oil" promises with not only supplements, but exercise programs that are often offered by individuals who lack appropriate medical training. It is a diagnosis that is both difficult to take and to manage. Osteoporosis medications are strong medications that do have some side effects for a small percentage of individuals who take them and because of that many people diagnosed with Osteoporosis are hesitant to take the strong medications.

Mayo Clinic has a great article that helps define 'natural vs. safe' that members may find helpful:

"Natural vs. safe: Why the two aren't the same"
- https://www.mayoclinic.org/tests-procedures/complementary-alternative-medicine/in-depth/natural-vs-safe-health-remedies/art-20587690.

There are some dietary and routine-based changes individuals can make to help with their osteoporosis diagnosis, but it is always encouraged to talk with your provider if you are considering any supplements or changes to your diet, exercise and medications.