← Return to Living with Neuropathy - Welcome to the group

Discussion
Colleen Young, Connect Director avatar

Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Feb 28 10:08am | Replies (6760)

Comment receiving replies
Profile picture for phyllisq @phyllisq

When I was diagnosed with peripheral neuropathy about 10 years ago I had never heard of it and went to the web for information. That was fruitless. My big question was what is going to happen to me. How do I prepare for the future. To not get any answers has been very frustrating. I was able to find and join a support group that met monthly and was coordinated by a hospital provided social worker. The sense of not being alone was amazing. Every member of that group was somewhat sad and very frustrated. Most suffered from diabetes which I don’t have, and the members were in a great deal of pain and on gabapentin and other drugs. Covid ended the support group.

Jump to this post


Replies to "When I was diagnosed with peripheral neuropathy about 10 years ago I had never heard of..."

@phyllisq That's how I came to find Connect. I was going to monthly meetings with the Minnesota Neuropathy Association in Minneapolis and was looking for a more local group to save me some travel time. Couldn't find one so stayed with the MN Neuropathy Association until they disbanded in 2018. During the interim I found Mayo Clinic Connect in 2016 and it was definitely a blessing. If you haven't already seen it, the Foundation for Peripheral Neuropathy has a lot of great information on living day to day with neuropathy - https://www.foundationforpn.org/living-well/.