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Has anyone used the oral medication for dry mouth (Sjogren's)?
Autoimmune Diseases | Last Active: Mar 18 6:52am | Replies (59)Comment receiving replies
@kellen I had positive ANA and CCP along with some low blood counts. My rheumatologist did an 'Early Sjogren's Profile Panel ' on me because I have all the symptoms of Sjogren's but don't test positive on the traditional anti-SSA, SSB tests, which according to him often won't be positive until there is advanced damage. The early panel was developed to help with an earlier diagnosis, but it's not relied on for an official diagnosis of Sjogren's. My rheumatologist has been great in that he is more concerned with treating the symptoms and inflammation and is quick to acknowledge that the tests aren't always able to detect the antibodies. Sjogren's is a tough one to diagnose apparently.
Replies to "@kellen I had positive ANA and CCP along with some low blood counts. My rheumatologist did..."
@fairn
I hope your rheumatologist will just start treating you! I've had Sjogrens Disease (It's now called a Disease, not a syndrome) for 30 years and never once had any Sjogrens antibodies. Then 15 years ago I was diagnosed with RA but its seronegative, again no antibodies. I did have Citrulline positive though and that marker shows that you've already had some bone erosion.
Yeah, the main thing is to start getting treatment. I hope your rheumatologist thinks it over twice!
@fairn Hi, all my test came back with positive results for Sleraderma, Sjögren's, lupus was on the low numbers thank god! I have Raynouds disease as well. Another test showed positive 2 times for antiphospholipid syndrome and I've had many mild ischemic strokes as well. I really think you need a new dr. And retesting. Just my opinion.. Good luck these issues are no joke.
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@fairn thank you. Very good to know.