@bluemorphos Thank you for letting me know. Again, I’m glad you got the surgery. That is scary that it could develop so fast. I might ask for a ca-19 test when I see my pcp mar. 12. I really appreciate all the detail. Best.

@bluemorphos Though different from your situation my husbands mass was only identified due to location and that it had blocked his bile duct causing jaundice, that prompted a CT which showed blockage and enlarged lymph nodes, then further testing was done, MRCP (MRI with contrast) which showed enlarged lymph nodes and 1.8 cm mass. ERCP/Biopsy was done and stints placed, biopsy was positive for PADC. CT scans since all have not shown any Pancreatic mass. Only enlarged lymph nodes. Oncologist shared that CT imaging of Pancreas due to density of Pancreatic tissue is difficult to see tumor. Which for us is puzzling, but he shared they look more at how a Pancreatic tumor affects the surrounding tissue. The only other test they have used was the CA9-19. My husband’s CA9-19 initially was elevated due to his blocked bile duct and after stint placement it became normal and has remained normal, so that test as well has limits. His mother and Aunt both died of Pancreatic cancer. His genetic testing was negative so also a limited marker. There is much still unknown about this cancer and it makes it difficult to diagnose. He underwent Neoadjuvant chemo after his diagnosis and a Whipple which was 10 hour surgery usually 6-8 hours complicated by Pancreatitis/inflammation. He has recovered well so far. He had an excellent surgeon who was experienced in Surgery doing 3-5 a week. Post op he had 30 lb weight loss, pulmonary embolism and small fistula, reduced appetite but quickly got back to normal. He was back to work light duty after 6 weeks. He is 55 years old. Recovery and surgery were rough but he feels it was his best chance to possibly beat this cancer. Wishing you the best.