← Return to Anyone diagnosed with Gastroparesis?

Discussion

Anyone diagnosed with Gastroparesis?

Digestive Health | Last Active: Apr 10 5:06pm | Replies (204)

Comment receiving replies
@donnamarie

I've had gastroparesis since 2005 and I was able to deal with it until 2 years ago. I don't eat very much to begin with but I kept getting very sick, pneumonia/bronchitis/dehyration etc. My electrolytes kept dropping down so fast causing confusion and making me so sick. Between 2016 & 2017 I was in ER 17 times, with 7 admissions. Gastroparesis reconfirmed again early 2017. I kept telling 2 gastros, my internist, a "specialist" that I paid out of pocket seeking a diagnosis; telling all of them the same thing, I couldn't hold my food down, not even the gastro diet, my stomach hurt all of the time, I was vomiting 4-6X week. That I was trying different foods in small amounts but It didn't matter. I told them I was belching so badly that I couldn't sleep, that I was hiccuping constantly that hurt. The hospital, along with these doctors all ran labs, labs all positive for dehydration and electrolytes. Stopped going to doctors & ER. Sick & tired, literally. Have been bedridden over 2 years. Finally, after 4 months, my husband insisted on taking me to a clinic outside hospital system. The clinic had access to all my records. PA diagnosed me within 15 minutes - severe malnutrition due to gastroparesis. Saw a new Gastroenterologist, tested me, gave me hope but I was unable to take Domperidone. He said I was so sick that he had to send me to Tampa. I'm seeing another Gastroenterologist on March 23 & a surgeon on March 27. I am scared. I am so sick, I have no energy. The pain is unbearable. I am being told I need surgery. Does anyone have any advice to give me? I'm on a liquid diet and drinking Pedialyte but I'm vomiting that presently also. Thank you so much. Donna

Jump to this post


Replies to "I've had gastroparesis since 2005 and I was able to deal with it until 2 years..."

@donnamarie, In all of the testing you have had, I am sure someone has checked for pancreatitis, but I would double check to be sure. There are times when the pancreas becomes so stressed that you don't get the typical extremely high liver enzymes (lipase and amylase) that point to pancreatitis. That also causes gastroparesis because your body is not producing the enzymes needed to digest your food which also leads to malnutrition. I would hope there is an easier to combat explanation, but your symptoms are identical to someone suffering from either acute or chronic pancreatitis.

Have you had an esophageal manometry yet? You could also have Nutcracker / Jackhammer esophagus like I do. I also have esophagitis eosinophilic, esophagus damage due to food allergies