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@dianedonohue Sorry if that info was depressing but it is important to know of all possibilities when taking these very powerful medicines. HCQ gets absorbed by all tissues in the body that is why it can cause blindness. Good luch on your journey.

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Replies to "@dianedonohue Sorry if that info was depressing but it is important to know of all possibilities..."

@dianedonohue thank you for letting me know! So sorry you experienced that. I have a bad track record with meds actually so am always pretty cautious. I'll probably stop quickly if I'm feeling my mental health shift especially after the initial adjustment period. I also started on half the dose I'm supposed to get up to since I'm sensitive and want to make sure I do okay. I avoided the steroids for a bit for the same reason but surprisingly that went really well so I'm hoping this goes better than anticipated.