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Colleen Young, Connect Director avatar

Post-Intensive Care Syndrome (PICS) - Let's talk

Intensive Care (ICU) | Last Active: Mar 3 8:07pm | Replies (632)

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@emsweller
Hi, Mary, I am so sorry to hear about your husband's situation and how it is affecting you and zapping your patience and energy. I do hope that he will be showing some signs of improvement, as even the tiniest bit of positivity would be good for you.
My husband was my caregiver before my organ transplant when my kidneys failed suddenely while I waiting for a liver transplant. I was in critical condition and not aware of all that was going on around me. After 5 days, I was flown from ICU in KY to Mayo Clinic in MN, all total I spent 3 weeks in hospital, but in my thinking, I was not completely aware or awake. Gradually, I realized that there were gaps in my mind and I wanted to know "What happened" during those times. I quizzed my dear husband to a point of exhaustion. I was frustrated because it was the tests and procedures that he could not explain to me. Later, I did look back at my medical reports and became more satisfied , and stopped quizzing hin. Only later did I realize that my questions were painful to him because durig that time, he was fully aware of how close I came to dying.
My situation after that is different, because I was able to receive an organ transplant and my health returned. I do remember that my emotions were everywhere after the transplant from joy to tears, but in my situation, that is a normal reaction.

Gigi, Is your husband having any kind of fo[[ow-up by cardiologist or primary care doctor? I think that this is something that you and he might bring to their attention. He might benefit from a medicine adjustment. Do you go to his appointments with him? Does this sound like something you would consider?

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Replies to "@emsweller Hi, Mary, I am so sorry to hear about your husband's situation and how it..."

Thank you both so much. So, the dilirium has improved. He was transferred to a Long Term Acute Care facility today and I have to be in court tomorrow to obtain guardianship (temporary). I couldn't go with him at the time. The facility is 2 and 1/2 hours away from our home. So, I will visit on Thursday and stay until Saturday. He has called me 3 times today. He says he is confused and doesn't know where he is. I softly spoke to him and said I know where he is and why. I reminded him that he is there to get stronger so he can come home. He just needs reassurance. I am very tired these days but I know he is scared and just wants to know he is okay and safe.