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Has anyone taken Prolia for bone loss after NETs treatment?
Neuroendocrine Tumors (NETs) | Last Active: Mar 5 7:59pm | Replies (10)Comment receiving replies
I have Carcinoid Tumors and have been on Lanreotide for over three years. I had already started Prolia 18 months before we found the Carcinoid and have not noticed anything different since starting Lanreotide. The Lanreotide has reduced my CGA to below normal for the past year and a half. I get it every three weeks, not four. Sending you love, prayers and hugs. You are a very strong and special lady.
Replies to "I have Carcinoid Tumors and have been on Lanreotide for over three years. I had already..."
@kathyalbert501
Thank you strength is something we all need
My fear is I haven’t gotten much relief from my carcinoid symptoms from my injections
The diarrhea and flashing are really bad sometimes and the fatigue
All the same side effects that Prolia has
It’s not a pill you can just stop it is a 6 month shot
My quality of life gets real bad sometimes I don’t think I could handle it if it got worst
Thank you for sharing
Good luck
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@kathyalbert501
Thank you so much for your input