@nanny23
They did a gastric emptying study. You eat a small meal, which usually involves eggs and toast.. sometimes they add bacon.. that they put a little radioactive material in so the camera can follow the food as it goes down the digestive track. It has been a few years since I had the test, but think a scanner took a few pictures and then after a certain time a few more pictures were taken.. long enough to sit a while in a waiting room between sessions. An upper endoscooy was done around the same time.. I think a week or so before. There was undigested food found and a small bezoar. With me they do not know what caused me to have gatroparesis.

@nanny23 Nanny, at this point I can only add a bit of info. One of the docs who did my endo mentioned that this is common as a side effect of several forms of neuropathy. That is, when whatever you have that will bring neuropathy gets into one of two places, the esophageal valve system or the sensori-control nerve, it can make the valves inoperable or inefficient. There are several disorder which can do this, such as various forms of Amyloidosis such as Crohn's, Multiple Myeloma, Light Chain, Gelsolin, any kind of misfolded protein. Also, of course, diabetes, cancers, simple nodules on the valve system. When they checked me for muscle movement, they found that some of the tubing was not moving quite as it should when I gave the command to swallow, or cough, or whatever. That would probably be the neuropathy, it seems, as I have neuropathy all over my body. Maybe that is why the doc calls me "Psycho".

I have neuropathy in my legs could I️ possibly have in my stomach also? Thank you so much for your reply

@nanny23.. Hi. Same for me. My feet, legs, a little in my hands..it will progressively spread too. Our stomachs use nerves to digest our food. The nerves not working properly contribute to the outcome of Gastroparesis. For me, it is most likely caused by the FGFR3 ANTIBODY so I would not be idiopathic (meaning unknown cause). For until it was discovered that I have this overabundance of this bad antibody, I was told my reason for having Gastroparesis was unknown.
Darlia

What is FGFR3 antibody and how did they find out you have it? Does that mean you have an autoimmune disease causing this? Thanks for replying.

Hi @nanny23..Ihad blood work sent to the Washington University in St. Louis, MO by my neurologist. He contacted me when it came back about 5 wks later. He told me that it was positive for the FGFR3 antibody which is a bad antibody gene. He said there is no way to know how it became so high or when it started. It could have been from some trauma. I have had trauma most of my life so, that's going to remain a mystery I guess. Normal # should be less than 3,000 and mine is 14,000. So, without any other cause so far for the gastroparesis, it would be suspected that this is the cause. This antibody causes neuropathy. If you go to my post on the FGFR3 Antibody, you can read more about it. Be safe out there! Darlia

I do not believe that FGFR3 is caused by an autoimmune disorder. However, I DO have autoimmune disorders separate from the Peripheral Neuropathy.

@nanny23.. greetings! I stand corrected.. my neurologist told me that the Neuropathy I have IS referred to as Autoimmune Peripheral Neuropathy.
Darlia

Thanks for the info appreciate it