If you're not familiar with the Vasculitis Foundation, they have a lot of useful information about vasculitis and the different subtypes, including GPA and EGPA. Their associated research division, the VPPRN, is a leading research center for vasculitis. if you are interested, you can register for the VPPRN and participate in research of your disease and general vasculitis. A lot of their research is done with online surveys, so participants can live anywhere in the world. Here is a link to the Vasculitis Foundation GPA information: https://vasculitisfoundation.org/education/vasculitis-types/granulomatosis-with-polyangiitis/.

I joined the Vasculitis Foundation and VPPRN about a year ago after being diagnosed with Giant Cell Arteritis and Polymyalgia Rheumatica. They support both of those diseases.