← Return to NETs growing despite 3 months of capecitabine and temozolomide
DiscussionNETs growing despite 3 months of capecitabine and temozolomide
Neuroendocrine Tumors (NETs) | Last Active: 21 hours ago | Replies (37)Comment receiving replies
Replies to "@tomrennie thank you all, so helpful. The pharmacy called her and as of now the dosage..."
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@briana311 Here is a link that gives you a lot of info on capecitabine from Mayo's website:
https://www.mayoclinic.org/drugs-supplements/capecitabine-oral-route/description/drg-20062501
I want to point out two things:
- Capecitabine is used for multiple cancer types. It has effectively controlled my NETs pancreatic cancer and squamous cell skin cancer.
- There are dosage formulas provided in the link. There seems to be a different recommended dosage for the different types and locations of cancer.
I have read a lot of posts and comments on Mayo Connect from patients with NETs, pancreatic cancer, colon cancer, rectal cancer, squamous cell carcinomas on various body parts, and breast cancer. I have learned two main things during my years of living on capecitabine that most others seem to confirm during their capecitabine journeys:
- The daily dosage milligram amount directly impacts the number of and severity of side effects.
- The length of time between cycles directly impacts the number of and severity of side effects.
The information varies, depending on your sources, on how long it takes capecitabine to leave your system. The most common belief is seven days. I feel the most "crappy", the technical term my oncologist and I use to describe when I am most impacted by side effects, during the last three days of a 14 day cycle and the three days after. But, I have also set off an airport body scan 10 days after completing a cycle. The scan lights up exactly where most of my cancer is on my pancreas, liver, and pelvic bones. My point is that the body needs time to recover between cycles.
There is a lot to look through and process. I am am trying to simplify something very complicated from my experiences. I have learned though, fighting cancer is like trying to eat an elephant. You can only do it one bite at a time. But, you have to have the desire to eat the entire elephant and the patience to do it. It takes a lot of time. Your thoughts?