← Return to NETs growing despite 3 months of capecitabine and temozolomide

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@briana311 I took three 500mg tablets in the morning and two at night. A cycle is two weeks on and two weeks off. I also took temozolomide from day 10 through 14 for the first 13 cycles. After about the seventh cycle, the capecitabine was lowered to two in the morning and two at night. The doctor thought it was working well and wanted to see if the lower daily dosage would be just as effective and easier on my body. It was fortunately. I still take two in the morning and two at night. That seems to be the magic dosage for me. I will be on it until it stops working or until something better comes along.

I am originally from Philadelphia. My family has been sharing pictures of the blizzard. I live in the Arizona desert now.

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@tomrennie
thank you all, so helpful. The pharmacy called her and as of now the dosage is three 500 mg in morning and three 500 mg at night. Just capecitabine for now and see how that goes. She is 118-120 lbs so I am a bit nervous reading and hearing about side effects esp since she tolerated the FolFox pretty well (tired, constipation, thinning hair).