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NETs growing despite 3 months of capecitabine and temozolomide
Neuroendocrine Tumors (NETs) | Last Active: 21 hours ago | Replies (37)Comment receiving replies
@tomrennie
Oh gosh. Side effects.
What is the typical dosage for capecitabine? I heard 3 pills in morning and 3 in evening but I am not sure if mg per pill or per day. And how long are you on this drug? Still waiting to hear from specialty pharmacy since we had a snow blizzard in northeast.
Replies to "@tomrennie Oh gosh. Side effects. What is the typical dosage for capecitabine? I heard 3 pills..."
@briana311 I took three 500mg tablets in the morning and two at night. A cycle is two weeks on and two weeks off. I also took temozolomide from day 10 through 14 for the first 13 cycles. After about the seventh cycle, the capecitabine was lowered to two in the morning and two at night. The doctor thought it was working well and wanted to see if the lower daily dosage would be just as effective and easier on my body. It was fortunately. I still take two in the morning and two at night. That seems to be the magic dosage for me. I will be on it until it stops working or until something better comes along.
I am originally from Philadelphia. My family has been sharing pictures of the blizzard. I live in the Arizona desert now.
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@briana311
I think dosage is dependent of weight and possibly other factors. They told me they needed to do a detailed calculation. I don’t recall my dosage.