Just an update, after initial round of six with no early issues except for the normal burning and urgency then flu like symptoms after the 5th snd 6th instillations. My first maintenance treatments continued to give me more issues including hematuria, body aches, headaches, nausea and fatigue. I had my second maintenance treatments ending three weeks ago and side effects worsened. My GP believes that I had an autoimmune event causing reactive arthritis in my hip and knee. I think I’ve had my last BCG treatment but it has kept me NED for over a year so I’m still an advocate for the treatment if you can tolerate it. The evidence for its prevention of tumor reoccurrence is very strong so I wouldn’t forego it even for non muscle invasive high grade tumors. Often even low grade patients get some BCG treatment.