Peripheral neuropathy FREEZING

Do you mean SORD?

Freezing? Not that BUT it’s cold on my right-leg, foot, hand. I had a TBI member from a bicycle accident in 2012. I lost 80 % of my memory, a great job, my families for the last years.
Thx,
Greg D. @greg1956

That's me for the feet, especially the toes. Worse in winter.

Get genetic testing, then you will know what it is.

I’ve had PN for 16 years. My feet stay cold. I’ve had them checked with a temperature gun. My feet stay 35-40 degrees colder than the rest of my body. They do feel like blocks of ice that are going to burst. The pain is sometimes unbearable. I have two spinal stimulators implanted in my spine. Neither help with my feet. I have tried everything, I’ve heard of. To no avail, I’m falling 2-3 times a week. That’s walking with a walker. I pray that one day God will relieve my pain.

Welcome @mae1900, Sorry to hear that you have not found anything to help relieve the pain and freezing cold symptoms in your feet. Have your doctors ever checked the blood flow in your legs to see if it may be causing your symptoms?

I freeze in my house when it it is 73. It can come & go. My knees will feel icy, feet & hands frozen. I will get a ripple up my back and then it get really bad. I do have neuropathy. Take gabapentin. Right now I have 2 pairs of pants on, long sleeve shirt, hoodie and a big wrap on & gloves & still freezing. The other night I turned on the wood stove and when it got to 79 in the room I finally felt good. I found this...

Feeling like you are "freezing" at 75°F (a comfortable room temperature for most) when you have neuropathy is caused by a dysfunction in your nervous system that acts like a broken thermostat. Damaged peripheral nerves send incorrect temperature signals to the brain, interpreting moderate temperatures as freezing.

Here are the specific reasons why this happens:
Misinterpreted Nerve Signals: Damage to small nerve fibers can cause them to overreact to, or completely misinterpret, environmental changes. Even though 75°F is not cold, your damaged nerves can create "cold" sensations, often in the feet or hands, without an actual drop in temperature.
Reduced Circulation (Vasoconstriction): Neuropathy is often accompanied by reduced blood flow to the extremities. When your body feels even a slight drop from your body's preferred temperature, it may constrict blood vessels in your hands and feet to protect core temperature. This lack of blood flow makes your feet or hands feel genuinely cold, even if the air around you is warm.
"Icy" Pain Misfire: Neuropathy often causes a paradoxical "icy burn" sensation, where your nerves feel both numb and intensely cold/burning at the same time.
Lack of Proper Regulation: When nerves are damaged, they fail to regulate temperature and blood flow correctly. This means your body is not effectively managing the warmth in your extremities, leading to a constant or sudden cold feeling.

Reading some of the comments I think others are suffering like I do. I think this is what causes it.

Welcome @tmacnyc123, Thanks for sharing. I have a similar experience with my neuropathy but don't take any medications as my symptoms are only numbness and some tingling in the feet and legs. I'm 82 now but when I was younger and my mother in law was living with us I stayed in the basement where it was much cooler during the winter months. Mainly because my mother in law needed the thermostat at 80 degrees during the winter. Now that I have almost reached her age I'm starting to understand and I keep the thermostat at 70 during the day and even then I'm cold.

Just in case you are looking for other Neuropathy topics, there are many more in Neuropathy support group here - https://connect.mayoclinic.org/group/neuropathy/.

Do you have neuropathy pain during the day also?

My feet were terribly sensitive to cold for years—now at night I cannot even use a sheet in a 65 degree room. Seems many things have a paradoxical effect.

Hi @johnbishop
I always have numbness/tingling in my feet, feels like I am walking on pillows. Have had 2 recent fall, feet not keeping up with me, hit the same knee both times, not good. I get stabbing pains in my legs, very random & rare now. I take a low dose of gabapentin, 100 mg 3 times a day. Any higher and it knocks me out. Mostly seems to work, very few pains lately. I also probably have Reynaud's. My fingers used to go dead white on me for years if it was cold, mostly when I was driving. That hasn't happened for a few years. I just turned 71 in January. We keep the house at 73 now (I am always cold unless under a ton of clothes), I would prefer 79 but only get that when I use the wood stove. lol
Was 17 here during the night, 25 now, got a little snow 3", might get more tonight. Going to run the wood stove soon. Barely run the AC in the summer, but we are in the mountains so it is cool. Run it a little to get the humidity out.
As I think back, my father was affected by the cold severely. We went rafting & he popped out of the raft. We almost had to take him to the hospital for hypothermia. We had him at an aunts cabin with her furnace on, he was under 3 quilts. None of us could stay inside due to the heat. Many times saw him covered in blankets while watching TV. He was a polio survivor, ended up w/ PPS.
Wonder if others have had shingles. I got them when I was 35. Could that be affecting the small nerve fibers? Hmmm. Something I will probably never know. I will check out some of the other groups. Thanks