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Pulmonologist/Infectious Disease Dr
MAC & Bronchiectasis | Last Active: Mar 1 7:39am | Replies (6)Comment receiving replies
@sueinmn
Thank you Sue, I was hoping you would see my question and respond. I see him on Wednesday and will use your advice. I have mentioned to him in the past that I joined a MAC group on the Mayo site and he did not seem bothered by it, so hopefully he will be receptive to my questions and concerns. I will let you know how I make out. Oddly enough I tried to see an ID Dr. two years ago, even had a referral from my family Dr. and she wanted to know why I had to see her when I had a Pulmonologist, Was actually questioning my family Dr. about it. I decided I wasn't going to pursue seeing her with that kind of attitude. Barbar
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@bbeers Glad you raised your concerns. I quit my first local pulmonologist because my gut told me he was not knowledgeable. I began researching the internet and came to that conclusion that I needed to find a better pulmonologist. I had to ask about testing the sputum and he granted that but didn't make any suggestions about how, when, what etc. So it came back nothing showing. This was all before finding Mayo Clinic Connect.
I knew of NJH from years ago and finally broke down and made an appointment with the facility. Outcome, low load of MAC/MAI. They put me on watchful waiting, nebulizing and ordered the Hill Rom Vest for me.
So, what Sue has said does come down to facing up to what needs to be decided. I thought the first pulmonologist was nice,....but...nice doesn't mean they know what they should know.
Barbara