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Has anyone lost weight with PMR/GCA on high dose Prednisone?
Polymyalgia Rheumatica (PMR) | Last Active: Feb 25 9:46pm | Replies (22)Comment receiving replies
@janb62 Yes, pmr can cause weight loss. I was realtivley small, too, and lost 12 lbs. People were very concerned, and in the beginning everyone (including me) wondered if something else was wrong. That was nearly a year ago. Lots of tests and so far nothing else has shown up. I'm down to 3 mg of prednisone and have put on about 2 lbs. I now try to stick to an antinflammatory diet. Have you tried that? I also do not eat gluten as it upsets my stomach. Fingers crossed our bodies' metabolism resets itself to normal when this is all done. Hang in there.
Replies to "@janb62 Yes, pmr can cause weight loss. I was realtivley small, too, and lost 12 lbs...."
@cyndiefromnc
"Fingers crossed our bodies' metabolism resets itself to normal when this is all done."
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Sorry ... the metabolic reset doesn't happen as soon as you get off prednisone. However, it does depend on how long you have been on prednisone. My endocrinologist said my metabolic dysfunction will take a long time to be reversed and some of the things might be irreversible. I was on prednisone for a long time ... but I have been off prednisone for 5 years. Things are gradually improving. I have made a lot of progress compared to when I first tapered off prednisone.
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@cyndiefromnc
When I started on prednisone my doctor was amazed i didn’t gain weight. Then after 8 or 9 months i put on 8 pounds suddenly. Seems my course has been backwards. I do follow an anti-inflammatory diet and did in my "other" life before diagnosis. I hope our bodies can regulate when we're off prednisone. I'm starting 3 mg tomorrow and hope to start seeing seeing changes in my moon face. This has been a big hit to the ego! Best of luck to you.