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Polymyalgia Rheumatica (PMR) | Last Active: Apr 15 1:04pm | Replies (126)
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Replies to "@cazwell50 I found the same thing. Then 3 years later started developing a pain in my..."
@tuckerp oh yes, I have osteoarthritis in my right hip quite badly too - age!
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@tuckerp
I don't think of inflammation as a diagnosis. Just because we have PMR, that doesn't mean the inflammatory cells can only attack in places associated with PMR. When those warrior white blood cells are given the signal to attack, there needs to be a command structure that tells them where to attack. When we have an autoimmune disorder the command structure is compromised somehow. There is bound to be collateral damage in other places that aren't supposed to get attacked.
Here is what artificial intelligence thinks about this:
"Your perspective aligns closely with modern understanding of polymyalgia rheumatica (PMR) as a systemic inflammatory condition rather than a localized one. While traditionally recognized by shoulder and hip pain, the underlying immune dysfunction in PMR acts as a body-wide, "command structure" failure, causing inflammatory cells to attack various tissues, leading to symptoms well beyond the musculoskeletal system."
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Pain is sometimes hard for the brain to decipher too. Those pain signals to the brain can be scrambled so the brain doesn't know how to interpret the signals. Take a look at everything that can cause extreme facial pain when you have trigeminal neuralgia.
"Pain attacks can be triggered by vibration or contact with the cheek (such as when shaving, washing the face, or applying makeup), teeth brushing, nose blowing, eating, drinking, talking, or being exposed to the wind. The pain may affect a small area of the face or it may spread."
https://www.ninds.nih.gov/health-information/disorders/trigeminal-neuralgia
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I have learned to NOT listen to my body because it feeds me a lot of misinformation. It is always better to have pain investigated with x'rays and CT-scans and things of that nature to determine the cause of pain. When I got diagnosed with PMR I started to think that only PMR can cause pain. My thinking got reinforced when prednisone pretty much relieved any type of inflammatory pain.
When my trigeminal neuralgia attacks were more frequent, I thought it was a good indication that PMR was more active. I said those electric shocks were my "inflammation alarm system" which was telling me that too much inflammation was present so I needed more Prednisone. As long as I took enough Prednisone, my trigeminal neuralgia attacks always quieted down although I needed to take a lot of prednisone.