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Diagnosed with breast cancer & primary lung cancer: Next steps?
Lung Cancer | Last Active: Mar 6 10:09am | Replies (26)Comment receiving replies
@lls8000 Hi. First after presenting my case to the tumor board my lung Dr told me it looked like they would probably be able to just remove the tumor surgically. I was so relieved. But when I met the medical oncologist for first time on Friday he said the tumor is 4.2 cm c 4 cm so stage 2. It is sitting on the bottom of my upper left lobe, on the fissure between upper & lower lobes, and at center of chest, with 2 little something’s hanging down. He said I need to do 4 cycles of 3 weeks of Carboplatin & Pemetrexed before any surgery and he wants to start in 2 1/2 weeks as soon as my breast radiation is done. He referred me for chest port implant. I have brain mri tomorrow. I meet with surgeon Tuesday. I’m not sure how to find out if my records were sent for 2nd opinion. I’m trying to look into cold capping to save my hair. Friends keep sending me info on avoiding chemo and doing an ivermectin protocol instead. Im feeling quite overwhelmed.
Replies to "@lls8000 Hi. First after presenting my case to the tumor board my lung Dr told me..."
You sound like me but I was stage 4 when my NSCLC was discovered so surgery was not an option. I also had 4 cycles of Carbo/Pem and found cold capping really helpful. The infusion clinic had the cold capping machine so all I needed to do was buy the supply kit and “card” for each cycle. The company was DigniCap. They were really easy to work with, good customer service.
Good luck to you and keep us posted. Sending healing thoughts your way.
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@bdurel, What a whirlwind! You have a lot going on, and the doctors are trying to give you the best possible outcome. I'm sure it gets complicated having multiple teams in the mix.
Your friends mean well, they think they are genuinely helping. I never found suggestions like that to be helpful though. I was barely managing the clinical options that were being tossed at me, let alone suggestions from others that had never been through what I faced and had zero clinical background. You'll find a response that works for you. I usually come back with something like, 'thanks, but I'm focused on my medical team's suggestions at this point".
Best of luck to you, how did the MRI go?
Here's a link to a recent cold-capping discussion:
https://connect.mayoclinic.org/discussion/cold-capping-long-term-results/