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Anyone experience lung collapse after esophagectomy?

Esophageal Cancer | Last Active: Feb 24 9:35am | Replies (15)

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Profile picture for earle @earle

Well, I can certainly use help. I forewent surgery, so esophagus is still normal length. My stricture is 3 centimeters long, about 1/3 of the way down my esophagus, which is exactly where the tumor was. Left to what it normally wants to do, the residual scar tissue almost closes my esophagus. Mine was almost closed, post-treatment, and the GE doc dilated it to 12 mm. That was near the beginning of November. Last week, it had almost closed and he dilated it to 15 mm and said he'd see me in 3 months. Of course, my first thought was that it would be closed again by then. I had chemo with proton radiation at MD Anderson. Basically, the tumor was replaced with scar tissue. So far, I'm testing cancer-free, but I'm less than a year post-treatment, so I take that with a grain of salt. I had heard of self-dilation, but my gag reflex is the worst my ENT has ever seen. I'd be interested in learning how you overcame that to be able to dilate yourself...

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Replies to "Well, I can certainly use help. I forewent surgery, so esophagus is still normal length. My..."

@earle if you read my posts you might get some guidance and I am happy to talk to you if you qant to discuss further and send you my number.

You can overcome the gag reflex with practice.

@earle if you are going to attempt self dilation you need to discuss with a doctor that knows how to do it. Every stricture is different. Mine is only 1.5 cm long and I did have surgery so mine is where they joined the stomach with esophagus. Anyway, discuss with your doctor to see if self dilation is viable for you but it seems to me it should be. My endoscopist dilated me to 20mm every time sonI bought three bougies, one 17mm, one 18.5mm, and one 20mm.

I started with the 17mm for a few occasions and after that I did one after the other in one session every five days or so. After a few months I quit doing dilations and I stayed open. Since then I do a tuneup every four months or so.

Send me a dm if you want more details. I can talk too if you prefer.