← Return to My PSA climbed 02, .04, .07 .15 .21 had a RP 2 yrs ago PSMA negative ?

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Profile picture for pamperme @pamperme

I had a similar experience. I went 2 years after RP with < .02 than it started to rise. My Gleason was 3 4. The pathology showed pt3a and two margins could not determine margins. There was cribform, EPE and the 4 was 40%. The pathologist made it a group three. It went to .15 PSA over the next year and a decipher test was done which was .92. I had 2 psma/pet scan one before and one after being placed on adt. I have been told by two different medical facilities that I should go through radiation treatment. As other people have said if i have a chance to kill it off, i want to do it because it is very aggressive at .92. I have only been on Orgovyx for two months and it messes with my mind emotionally and stress/anxiety (other issues than the cancer) which I do not like so hopefully after radiation I will be able to stop, they originally told me 6 months but for some reason the prescription was for 11 refills.

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Replies to "I had a similar experience. I went 2 years after RP with < .02 than it..."

@pamperme That is a very high Decipher score and you’ll probably be on ADT for a full year because of that.
But don’t get bummed; if it’s messing with your head, it’s a real chemical side effect. The blues - and frank clinical depression need to be treated chemically with either anti-anxiety drugs or mood elevators.
Don’t make the mistake of trying to ‘man up’ or ‘tough it out’ since SE’s usually get worse the longer you’re on ADT.
Talk to your RO and get a referral or an RX; this is not uncommon and they’ve seen it all before. Best,
Phil