@hope52 I come prepared to my appointments with my list of questions in front of me. I take notes and save all of these in a folder. Some women here have shared that they keep all of their information in a 3 ring binder. In my view it helps to come prepared for appointments and to keep information organized at home.

Your pathology report should include information on myometrial involvement and any other testing that was performed. You can go over that with your oncologist during your appointment.

At my first appointment with my gyn/oncologist following my hysterectomy she gave me a Cancer Survival Plan that was personalized for me. The plan included my results including the pathology report, how often I should return for cancer surveillance appointments, specific information about the cancer I was diagnosed with (endometrioid adenocarcinoma) , what signs and symptoms I should look for in the future, and the risk of recurrence. I still have the Survival Plan in my files and when I need information about initial diagnosis and recommendations I pull out the plan.

I was surprised that at that appointment my gyn/oncologist also recommended observation. I returned every 6 months for a physical exam, no imaging, and no other treatment.

My surgery and subsequent appointments have all been at Mayo Clinic. So, my pathology reports and clinical notes following each appointment are all available to me digitally in my patient portal that I can access at any time.

My husband was present at my appointments which I found helpful as he is another "set of ears". Do you have someone who will go to your appointment with you?