← Return to Giant cell arteritis:I’m afraid and would appreciate any advice

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@tinkerbell

This is Tinkerbell. I had Giant Cell Arteritis and was diagnosed in the Emergency Room at Mayo Clinic in Jacksonville, Florida. I was started on 60 mg. Of prednisone the day I was seen in the Emergency Room. I came down 10 mg. Every 2 weeks. When I got to 20 mg. The problems began. I went down to 17 1/2 mg. And had problems right at the beginning. I had to go back to 20 and then start down at 1 mg. Every 2 weeks. I was on the prednisone for 1 1/2 years. If you have any questions I will try to answer them.

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Replies to "This is Tinkerbell. I had Giant Cell Arteritis and was diagnosed in the Emergency Room at..."

I have just been diagnosed with GCA.
Had you PMR prior?
How are your bones doing ?
Did Mayo suggest Actemra or Methotrexste ???
I have a panicky feeling and Inappreciate any input !
How long did it take ti get your first Appt at Mayo?
Thank you so much fortelling your story