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DiscussionAnyone have success with treatment for vaginal Lichen Sclerosus?
Autoimmune Diseases | Last Active: Mar 31 4:10am | Replies (170)Comment receiving replies
Replies to "@fdixon63 Im still in the process of getting a doctor through my health insurance to actually..."
@datflbaby1987,
I am so sorry you are going through this hell. If your husband loves you or even cares for you I would hope that he would be patient and understand AND believe you about the problem. Show him kindness when he asks about it and give him clear explanations so he doesn't think you are crazy. Because you are not. But he should have a good understanding and compassion of what you are going through. Once they told me I was allergic to my husbands sperm because of some of the troubles I was having. I just believe they don't really know what is going on and they try to find an answer to give us but men doctors have NO clue, I would only see a woman doctor for the fact that they are women and hope for compassion from them and help.
I am having similar but not exactly the same trouble. I am looking for solutions. I have had to stop and change all my laundry detergents and never use anything like a dryer sheet, and then all my soap bath body lotions shampoos everything to get clean products. Anything that might get near or touch my lady parts. It is really frustrating that we go through this, I have found that because that area is never totally dry that there is always moisture there that bacteria can grow so fast. I go all morning in a dress without any underwear so that it can breath and dry out. I live alone, so it isn't that much trouble for me. Please don't be embarrassed to talk to your husband about this he may be able to help, and at least understand. I sure hope you can find some relief from all the pain and worry and fear. God Bless you.
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@datflbaby1987 about the estrogen cream you spoke about for me it made mine so much worse. I NEVER would dare put estradiol cream down there again. Im already prescribed it for HRT but I used it for about a week to see if it would help my LS and for me at least it caused it to flare up even worse. Causing me to get a yeast infection to top it off. I've heard about steroid creams and that basically thats the only way to cure it and keep it under control. I've watched many , many ,many YouTube videos from board certified doctors and everything. And every single one says the same thing that this steroid cream is the most effective treatment available and to never stop using it as your symptoms will come back. They also said if a Dr tries to put you on estradiol cream it may work for some ppl but most need the steroid ointment but also depends on the severity of it. But I would step to your doctor about a steroid cream that they speak about all over the internet and even on Wikipedia about LS. I wish you the best of luck. I've used witch hazel spray for when after you have a baby. I store it in the fridge so when I use it its nice and cold, I also use ice packs the jelly ones when im having a flare up and ive tried replens vaginal moisturizer, good love vaginal lubricant with lidocaine, monistat hydrocortisone cream, vagisil anti itch cream, metronidazole gel externally, and olive oil,coconut oil etc. It all seems to help the 1st several times I use it and then boom I get a flare up. I literally feel lost and like the medical system has failed me. Going through this for so many years and being told at times nothing was wrong with me.... exact words of an obgyn I was seeing. I walked out of her office and told the front desk not to schedule me another appointment. Im still praying to get a diagnosis so I can get on the steroid cream they prescribe for it and pray 🙏 thaf works. It had a pretty hi success rate and you may even have to switch doctors if yours doesn't treat you properly. You should be on a steroid cream to help manage the symptoms. Seems like they just gave you some homeopathic remedies and estrogen. Estrogen isn't your problem and can actually make it worse if your LS is caused by your fluctuating hormones like mine is. My hormones change just a bit and I'm grabbing my crotch like Michael Jackson all day.... literally saying OUCH! But I hope this helps. I recently found an ad about emu oil this company makes it and resell it as a oil, cream, bar of soap, etc. I've read alot of actual reviews on reddit about it. Some ppl just buy pure emu oil but I promise you I tried that and the smell was absolutely horrible. It does come from an emu. But im in a corner right now trying anything until I can get diagnosed and then the proper treatment from an actual doctor. But I promise you I've seen the photos of LS and thats 100% what I have. I just cant believe it took me until I basically destroyed myself down there from the constant itching especially at night time. Like all these years dr after dr just said oh its a classic yeast infection and sent me on my way. I even went to the ER several times for lesions etc down there and not once did they mention how I could possibly have LS until I scratched myself raw and caused actual nerve damage to my vulva. But I hope this helps and my prayers go out to you all. If your keep getting reoccurring itching after treating a yeast infection GO BACK and donf take NO for an answer like I did. Push for answers. Took me getting on Google to figure it out. Doctors don't examine you like fheg used to. You go get a pap and tgeg just insert the thing inside of you , they dont bother doing a check of your vulva even after constant complaints of itching and burning, skin peeling off , looking scaley like a fish and changing in color. Like how could they have missed this all these years just blows my mind.