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NETs growing despite 3 months of capecitabine and temozolomide

Neuroendocrine Tumors (NETs) | Last Active: Mar 21 2:05pm | Replies (37)
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@kevinmonroemi
I didn’t have hair loss either. But a lot of tough GI issues. Ended up in ER2nd round. 3rd round I had colon spasms that knocked me over. And low blood counts and dehydrated. Despite all that “discomfort” tumors kept growing. So the drs said no point in taking cap tem.

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Replies to "@kevinmonroemi I didn’t have hair loss either. But a lot of tough GI issues. Ended up..."
djchambers | @djchambers | Feb 21 4:48pm

@djchambers
I’m starting folfox this week. Maybe that will have better results with shrinking tumors. I have two grade 3 well differentiated

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