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Article about Long COVID that has good information
Post-COVID Recovery & COVID-19 | Last Active: Feb 28 5:44am | Replies (13)Comment receiving replies
Just keep looking for that "right " doc...I finally found someone who works with me. She called the long covid doctor in town who practice is full and got a long list of ideas. Low Dose Naltrexone was a life changer for me. Brought back about 50% of my energy. I can shower and still get other things done the same day. I can walk about 2/3 of a mile in the morning when weather allows (still very sensitive to humidity which makes me quite short of breath), work on the computer, eat lunch and crash about 1 pm. Get up at 430pm, cook dinner and crash again about 7 pm. This is much better than the first couple of years being basically bedbound!
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@vostie great to read that it helped you. Others have mentioned. All the docs I see have said "no" to Naltrexone because of other meds I'm on. One the extensive blood draw this week is read and reviewed by my newest ID doc, I'm hopeful something will be seen that gives greater clues. After reading about hormonal imbalance from long COVID, and because I'm long past menopause, the ID doc is looking for that as well as a "trigger" to my past non-Hodgkin lymphoma to see if anything has triggered that to return. Too many docs diagnosed one _aspect_ of the symptoms and made a decision to dismiss me based on what they knew and treatment for ONE thing. I hope the new doc is as curious as our first meeting indicated.
JE
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@vostie
I see a long Covid doctor at Ohio State, who has been doing research and treating folks since this started. The most emphatic recommendation he made to me was to pace myself. He said that pushing too hard and then crashing comes at a greater cost than just having to rest and recover, but that it would set back my recovery. He explained something about mitochondria, but I have to admit I was too tired at that point to follow. My Long Covid physical therapist says it’s like a loan shark when you borrow energy – it comes at a very, very high interest rate. I know it’s not always easy to pace, but it’s easier when you know that slowing down for now will help you gain energy in the future. BTW - I am barely 2 weeks into the specialized physical therapy. After another couple weeks, I’ll post the protocol and my experience with it. So far, it’s something you can do at no cost at home.