Connect
← Return to Neuroendocrine Tumor - no treatment plan method
Discussion
Neuroendocrine Tumor - no treatment plan method
Neuroendocrine Tumors (NETs) | Last Active: May 5 8:09am | Replies (164)Comment receiving replies
I'm going to do the capsule endoscopy although I'm going to rule out any more surgery. In that case ... I'm not sure why I would do the capsule endoscopy.
I have another surgery pending for whenever I'm ready. I would add any NET surgery to my list of things I should do. An orthopedic surgeon that replaced my knees has already said I should never have any surgery again. My knee replacements look great but there was an "aberrant healing process" in the soft tissues surrounding my knee replacements. My immune system is deranged.
I have an annual "routine" abdominal CT-scan to monitor kidney stones. It was on the abdominal CT-scan from last year that something suspicious (possible NET) was seen. I'm wondering if they could just add some contrast or something to see what they need to see on my next abdominal CT-scan?
Replies to "@siluka I'm going to do the capsule endoscopy although I'm going to rule out any more..."
@dadcue Hello, good afternoon. The most reliable way to detect neuroendocrine tumors (NETs) today is a Dotatate PET scan, which generally uses gallium-68 as a contrast agent. My wife's tumor was discovered through this scan; it didn't show up on MRI or CT scans. Inquire about this scan and whether your health insurance will cover it. I don't know how it works in other countries; I'm in Argentina. Good luck.
Connect
@dadcue Ask for dotatate pet scan if the tumour is big enough it should light up.