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NETs growing despite 3 months of capecitabine and temozolomide
Neuroendocrine Tumors (NETs) | Last Active: Mar 21 2:05pm | Replies (37)Comment receiving replies
@briana311 I was on captem for 7 months no hair loss! Just tired a lot.
Replies to "@briana311 I was on captem for 7 months no hair loss! Just tired a lot."
@kevinmonroemi thank you. Have you tried any other treatments besides CapTem? I assume tired is a side effect for all chemotherapies as well as the cancer itself. Good luck.
@kevinmonroemi
Now the soles of my feet are peeling. I’ve been off cap/temo for several weeks.
This is one of the symptoms they warned about. I’ll tell Dr. not sure what if anything to do about it.
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@kevinmonroemi
I didn’t have hair loss either. But a lot of tough GI issues. Ended up in ER2nd round. 3rd round I had colon spasms that knocked me over. And low blood counts and dehydrated. Despite all that “discomfort” tumors kept growing. So the drs said no point in taking cap tem.