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@jahmGoid afternoon,
I cannot begin to tell how encouraging it was to read your email! It sounds terrible but some how I feel relieved to hear I’m not the only one having these experiences.
My rheumatologist just prescribed me Mycophenolate. Have you experienced any side effects?
Thank you so much for your respond!
I pray you are feeling much better these days!
Janet😊

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Replies to "@jahmGoid afternoon, I cannot begin to tell how encouraging it was to read your email! It..."

@jandy88us
Hi,
I would say that the Mycophenolate has helped to control the damage to my kidney ( I have only one as I donated one 30 years ago) but I do experience fatigue and sometimes a bit of nausea but all it all not bad. I was at Mayo in January and my IGA Vasculitis is in remission for now and hopefully a long time to come . I have not had those burning episodes or at least lasting or severe for about a year.
Stay positive, treat yourself well and remember the good days and know they are possible. At or a lot of prayer helps too!
Best wishes!!