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Prednisone Taper Stories

Polymyalgia Rheumatica (PMR) | Last Active: Mar 5 11:55pm | Replies (101)

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@petermccarville

I can't agree more!!!

I had a chance internet meeting with an amazing person who had an adrenal crisis because of her long term prednisone use. She wanted me to see an endocrinologist when I told her about my long term prednisone use. She could relate to everything I told her about all the difficulties I had with getting off prednisone. There wasn't much she could do but at least I was able to reverse course and I managed to get off prednisone. I had more problems with people who encouraged me to take prednisone for the rest of my life. I was never certain what "quality of life" that Prednisone offered to me.

The link below is the long preliminary dialog that I had with the person who had the adrenal crisis. We continued to exchange information via email before she died. I credit her with turning my life around. She renewed my quest to find an alternative to prednisone.
https://www.healingwell.com/community/default.aspx
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The endocrinologist I saw had a different perspective than my rheumatologist. However they both shared the common goal to get me off prednisone as soon as possible.

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Replies to "@petermccarville I can't agree more!!! I had a chance internet meeting with an amazing person who..."

@dadcue Excellent dialogue between “Seashell” and yourself. Very informative and knowledgeable advice.
Advice that I will keep in mind as I taper Prednisone. I now know what specialty of Endochronologist to engage should that be necessary.
Is Seashell still with us?