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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Jun 8 11:23pm | Replies (2096)Comment receiving replies
@dadcue I only dealt with neurologists when I was being diagnosed. Plus my B12 and D levels haven't been monitored. My rheumatologist strongly recommended a small daily aspirin for me because of the vision problems at the time of my diagnosis, and also because of the risk of stroke from the GCA. I have taken a PPI because of the combination of prednisone and the aspirin since the time I started treatment. I tried stopping the PPI after I finished the prednisone, but I still have issues from the aspirin. I'm going to try upping my doses of calcium, D3, K2, and B12. I'm tired of being tired.
Replies to "@dadcue I only dealt with neurologists when I was being diagnosed. Plus my B12 and D..."
@jeff97 Never up your dose of any non-water soluble vitamin or mineral without using blood work and a Doctor. Both vitamin D and K2 are NOT water soluble and will do significant damage to organs if the levels are too high. Do not play games with what you think is a vitamin deficiency get a simple blood test from your doctor to be sure and get the correct dosage only if needed. A large number of Kidney, and Liver disease and failures come from people taking too many non water soluble vitamins and minerals.
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@jeff97
"I'm tired of being tired."
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That probably stems from adrenal suppression. Regardless ... everything points back to being treated long term with prednisone. I chased down so many problems when they arose when I was on prednisone simply because I needed answers. Every time I thought that I had an answer -- the fingers were all pointing toward prednisone. PMR and my other autoimmune problems are still mostly a mystery to me.
I don't know the answer for not taking prednisone when it is needed. However, being on an alternative to prednisone solved many of my additional problems including the overwhelming fatigue. I'm still tired but at least it isn't overwhelming anymore.