@jandy88us
Good morning,
No answers for you but I will share my experience. I was diagnosed with Hashimoto’s years ago. Prior to that and after I would get these sensation through my body that would literally move from place to place on and in my body. Face, tongue, arms, legs and feet. I had a thorough work up at Mayo year ago and they could find nothing. I was placed on Neurotin and took it for years . I don’t know if it ever helped much. Since the first couple of year it has come and gone and has occurred far less frequently. I stopped taking the Neurontin about 4 years ago. I have since been diagnosed with IGA Vasculitis and was started on Azathyoprine but could not tolerate it ( significantly raised my liver enzymes) so now on Mycophenolate.
I honestly think the sensations , which were awful and so difficult to tolerate were all intertwined with my many autoimmune issues.
I don’t have your autoimmune diseases but definitely diagnosed as autoimmune.
I wish you luck in finding help. I was so bothered by the sensations and then they would go away for a short time and return . It would bring me to tears. I think the stress and constant worry of its return didn’t help. I think I know exactly how you are feeling and hope in time in receeds or doctors may find something to help.
Wishing you the very best and may you experience some very good days soon.
Take care your feelings are real.