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I share the same question. I was diagnosed with PMR in November and it took a higher prednisone dose than most to remove the pain (max 50 mg/day). I’m now at 25 mg/day, split dose, but the pred is disrupting several other systems and I’m anxious to titrate off. I’ll see the rheumy again in a couple of weeks for my 2nd visit and will ask him as well, but am interested in the experience of this community. Personally, I believe living with some level of PMR pain is likely a more strategic choice than letting the prednisone wreak havoc with my endocrine, cardio, and other functions. Good luck to the OP and I will share what I learn from rheumy visit #2.
Replies to "I share the same question. I was diagnosed with PMR in November and it took a..."
@kathy22wright I fell the same. I started on 20mg of prednisone last December and after some aggressive tapering and learning that aggressive is the wrong adjective to place in front of tapering when prednisone is involved I am now down to 3mg with the hope of 0 in 90 days. I have been told by my rheumatologist that some of my issues and pains can be attributed to osteoarthritis and therefore my reason for addressing your predicament and questions. I too would rather live with the daily aches and pains (as long as quality of life still good) than subject my body to the long term affects of prednisone. An occasional Advil or Tylenol Arthritis to get me through some days is more acceptable than living with the fears of prednisone damage.
@kathy22wright I agree, learn to handle more pain and get off prednisone.. that’s my goal until some thing better comes along.. I love you guys.. thanks for being real!! Cheri
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@kathy22wright
Ask your dr…..but, me thinks you need to taper at a dose until pain free BEFORE tapering again. 20% decrease. All info from my experience and Dr.
I am a 79yo female, fit and super active, on no other drugs or maladies.
It has taken me the full 2 yr cycle.
Others on this blog have multiple issues nd their stories might help……you might want to share your specifics.