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Brinsupri experience after 3+ months
MAC & Bronchiectasis | Last Active: 1 hour ago | Replies (246)Comment receiving replies
When I started Brinsupri in September I was probably almost MAC free. A lab test the previous June had shown a major decline in MAC and then the test I took in October showed up as totally MAC free. Nobody can explain how that all happened since a year ago I definitely had Mac. I had been on the big three for a very short period back then but could not tolerate the drugs. I had taken no drugs since April 2025.
Yes, the daily 25-30 exacerbations involved violent coughing and an extreme amount of mucous production. That is what has almost totally disappeared since starting Brinsupri.
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@pagechapman Great story of the findings of negative for MAC and now your journey with Brinsupri. Thanks. That explained it well, "violent coughing and extreme amount of mucus."
I have a feeling of mucus caught nearly all day long in the throat of which I assume is in the trachea. I wonder if it's some of what comes up each time I try to clear and do clear yet some hangs on until I suck it up or huff cough again. Thank goodness it is not violent coughing and not extreme mucus that I see as yellow when I clear it into a clear solo cup.
Glad to hear all this with your being just four years ahead of me, I am 83. That is very encouraging. I am fortunate to not have any other health problem that could add to and or compromise me and the BE. Do you have other health problems or all clear in that respect?
Barbara