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Does anyone have any information about Vasculitis GPA?
Autoimmune Diseases | Last Active: Feb 24 2:12pm | Replies (11)Comment receiving replies
I have had GPA since 2018. Like most diagnosis followed at least a year of crazy sicknesses. The protocol drugs after Prednisone are Rituxan and Tavneos. The sooner you are on them the better. They can get your disease to inactive... not doing more damage. Unfortunately for all of us, we've had significant damage by diagnosis. Sorry for your losses.
If you don't have one... find a Rheumatologist who knows GPA. The Vasculitis Foundation keeps a national list of docs. Blessings on your journey. Life will be different, but can still be wonderful.
Kathleen
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@purehope2022
Thank you so much, Kathleen. It was very helpful. I never even heard of this disease for all of my problems. I appreciate all the information you can give me. I am at MUSC in Charleston working with the Rheumatology department there and the pulmonology NCT clinic he seemed to be doing pretty good, but it took a long time to convince Rheumatology. This was vascular GPA. As soon as I started on the steroids though and started turning around and getting better.