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Neuroendocrine Tumor - no treatment plan method
Neuroendocrine Tumors (NETs) | Last Active: May 5 8:09am | Replies (164)Comment receiving replies
Thank-you! ... your CgA result helps me put mine into perspective. I don't really want to do anything that looks for another medical problem. I have plenty of medical problems already.
I'm not even sure that I want to do a capsule endoscopy that is going to be scheduled. Just because something "looks suspicious" on an abdominal CT scan ... maybe it is better to back off and leave it alone.
Replies to "@tjstaufr Thank-you! ... your CgA result helps me put mine into perspective. I don't really want..."
@dadcue I had a capsule endoscopy which helped diagnose my net tumours and exactly where they were. Helped surgeons so when they went in knew approx where to look.
I had two intestinal resections due to a bowl block. This is how my gpNET was discovered. Then I had PET scan they found a meningioma brain tumor that was also in my right optic nerve. So thankful for pet scans finding other things wrong. Saved my eyesight. Finding things to me is a blessing because I can treat them, remove them. Ovarian NET found removed.. just so many examples I embrace bad news because it gives me control to address.
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@dadcue
CGA can be unreliable as a net marker as it is easily and frequently impacted by other things, usually ppi's. Had you taken any ppi's such as pepcid prior to the labs?