Oh @bettyjackson, if I weren't curious about it and reading more and thinking "surely someone will have found research I've not and have at least an idea" or if I weren't so incredibly stubborn, I would give up. Too many days, esp. at night, when I'm especially tired and my body parts impacted "hit" me, I do yell "why am I bothering???" Too, I think for each of us a desire to help others by learning more is very much more of it. I do NOT expect to even find something to treat the symptoms. I know I need to get my hearing tested again - it seems that more has been lost in my left ear and I'm unsure if "tuning" my left hearing aid will help. I so appreciate your words and am grateful to inspire you. This page is one of the few places at which I feel I can be myself about the symptoms. My late friend (not gone bec of COVID), Mary, and I would call the body complaints "Organ Recitals" and try to laugh. Too few want to hear them.

Do what you can. Keep asking questions. I think if we are annoying enough we will be heard.

Prayers and hugs right back to you.
JE