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Profile picture for bgayle @bgayle

Sounds tough . . . Radiotherapy and
chemo too. I just made my living will, saying I only want palliative care
if I am unable to speak for myself. I wonder if I should, have a tattoo
that says 'Don't resuscitate'? (Joke) I have been so lucky so far. There is
no fairness in this illness. It goes to whoever and where ever it wants.
Hole you have some luck too.

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Replies to "Sounds tough . . . Radiotherapy and chemo too. I just made my living will, saying..."

@bgayle About the tattoo joke… I don’t know what state you live in, but in a number of states there is a document called a POLST. We have it in CA. It’s a one page instruction to medical personnel to indicate if you want DNR or not but also includes a statement about hospitalization or comfort care. It has to be signed by a doctor (or medical professional). You keep the document with you. It’s a real way to avoid CPR if you don’t want it. Your doctor can help you with it if available in your state, or palliative care or hospice care would have it too. It doesn’t replace the advanced directive, you can have both.

@bgayle I had the EGFR genetic mutation. The oncologist says it's a crapshoot who gets the genetic mutations. No history of cancer in my family. My mom had breast cancer in her late '50's and was declared "cured" by 1990 and lived 20 more years. I had been up to date on gyn visits and mammograms.
My first reaction was do nothing, but doctor said I'd have 6-9 months. I have famiy and friends who love me, so I'm fighting. Don't give up too soon. I've heard of people on tagrisso or other targeted therapy for many (7+) years!