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@jeffmarc

My urologist seems determined to only follow standard and well-established guidelines which means radiation treatment followed by 18 months or more of Lupron. Hopefully my PSA will remain low enough that I will not need any further treatment. I cannot risk another round of Lupron.

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Replies to "@jeffmarc My urologist seems determined to only follow standard and well-established guidelines which means radiation treatment..."

@pesquallie
If you have a reoccurrence that requires radiation, then you do not want to work with a urologist anymore. You want to get yourself a Genito urinary oncologist, The ones that specialize in prostate cancer. They will be more willing to modify the requirements to what you really need. There is no fixed rule, There are recommendations, which can be modified.

You need to be proactive if you have future issues, Tell them what you want. The reason I am on Darolutamide Is because I told my oncologist I wanted that instead of a PARP inhibitor. She had no problem with doing that. After starting me on the PARP, and my saying I wanted a change five days after starting it, I was switched to Darolutamide. If I had not spoken up, nothing would’ve changed.