@squitirogloria I've learned a ton as well! I value information from my doctors, but sometimes it is not forthcoming. Information from all sources is welcome to me, anecdotal and otherwise. NIH studies are also helpful to me and pooling advice with friends who are gathering information and doing some of the same things I am. We fill the gaps in each others' knowledge sometimes. Doctors are sometimes helpful in giving you part of the picture. We need to find out much more from other sources as well. Thanks to everyone in this forum!