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What could doctors do better for people with epilepsy?
Epilepsy & Seizures | Last Active: Apr 2 7:15am | Replies (71)Comment receiving replies
Thank you for sharing your experiences, @methel !
It sounds like you have built a true partnership with your neurologist — and that is such a gift. Having a doctor who genuinely listens, treats you as a whole person, values patient-generated knowledge, and welcomes your questions rather than being bothered by them makes such a difference in how we navigate our condition.
Curious to know, what do you value the most in your neurologist?
Chris
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@santosha
To answer your question: yes, my neurologist took my suggestion on an adjustment in medication and my seizures were controlled. That’s most important. But also, his support staff is phenomenal. In person, they are knowledgeable, supportive and helpful. On the phone, they know the next steps.
In my experience too many times there’s a disconnect between the person at the front desk in the doctor’s office and the doctor. The receptionist radiates ‘ this is a boring job. Isn’t it time to go home yet?’ No matter how good the news or the doctor, the visit is more stressful.