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NETs growing despite 3 months of capecitabine and temozolomide

Neuroendocrine Tumors (NETs) | Last Active: Mar 21 2:05pm | Replies (37)
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Profile picture for zacharycat @zacharycat

@djchambers
I had both folfox and PRRT. Pretty good response to both but PRRT is much less time consuming and didn't make me sick. Folfox got worse every time from 3rd cycle on, though not intolerable. Was afraid of hair coming out or vomiting, but nothing like that happened.

Recent article on treatment sequencing for G3 NETs-
https://www.researchgate.net/publication/395618023_Sequencing_Choices_and_Real-World_Clinical_Management_in_Advanced_Grade_23_GEP-NET_Treatment_The_Emerging_Role_of_PRRT

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Replies to "@djchambers I had both folfox and PRRT. Pretty good response to both but PRRT is much..."
Turkey, Volunteer Mentor | @tomrennie | Feb 20 11:44am

@zacharycat This is awesome. Thank you so much. It really adds credibility to me that Dr. Thor at Mayo Rochester contributed to the article.

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djchambers | @djchambers | Feb 20 2:19pm

@zacharycat thanks. My tumors are not likely responsive to PRRT.
They said most people only stay on fulfox for a few months because of problems.

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