@jlf2 https://www.wadsworth.org/public-health-programs/newborn-screening/newborn-screening-program/isobutyryl-coa-dehydrogenase-ibcd-deficiency

@jlf2
I looked this up on A.I. I use Microsoft Co-pilot. I find it an excellent source of information. When Co-pilot list information at the bottom will give where they got information. For the below I saw NIH.

Isobutyryl‑CoA Dehydrogenase Deficiency (IBCD or IBDD)
A rare genetic metabolic disorder that can sometimes affect the heart muscle, especially in infants or children.

🧬 What the Condition Actually Is
IBCD is caused by a mutation in the ACAD8 gene, which affects how the body breaks down the amino acid valine.
Because of this metabolic issue, some individuals—especially infants—can develop:
• Dilated cardiomyopathy (a stretched, weakened heart muscle)
• Low muscle tone (hypotonia)
• Anemia

Who Typically Has It?
• It’s genetic and autosomal recessive (both parents must carry the gene).
• Often detected on newborn screening.
• Many people with it never develop symptoms.

When you say heart function at 35% I believe they are telling you your ejection fraction (EF) is at 35%. Cardiology (per my heart failure and EP) say when EF gets to 30% they usually recommend a ICD. In many cases if you have electrical issues like I do they also do a pacemaker.

When I got my ICD/Pacemaker my EF had gone down to 30%. When they put in ICD/Pacemaker and changed my medications my EF stabilized as 25% and has stayed there now for over 20 years.

A lot of athletes get ICD/Pacemakers. There extreme training brings their resting heart rates so very low they can have arrythmias. The ICD/Pacemaker is an outpatient surgery and very common surgery these days with great outcomes.

What my EP said to me about getting used to having a ICD/Pacemaker. Consider having the devices as your own dedicated EMS for you when you need it. Thus a ICD/Pacemaker will respond to you within seconds of recognizing a problem versus a EMS or ambulance getting to you what 30 minutes, etc.?

For stress. I learned in Yoga deep breathing. Close you eyes, think of something pleasant (I look at the beach with rolling waves in) and deep breath through your nose but having your stomach breath in as deep as you can, then open your mouth to a shape like you are blowing out candles and slowly breath out until no air left. Then do this again. Try this when ever stress get high and see if it helps. I do it all the time.
Good Luck!!