Is loss of balance your primary complaint with neuropathy?

Posted by rollo8 @rollo8, Feb 9, 2025

Is the loss of balance your primary complaint with PN? And, fear of falling?
I have no pain in my feet. I do have numbness of primarily my toes and forefoot, and to a lesser degree of the whole foot and ankles. My feet have weird sensations of walking on mashed potatoes and sliding sideways; when I haven’t actually moved at all. Scary. I claw at the air thinking I am falling. My toes are curled and they feel stuck together. Carpeting really adds to the sliding sensation.
I am a 73y old woman and, up until the last year, I volunteered with an animal rescue and walked on uneven cement dog runs, cleaning enclosures and feeding and walking dogs. Eight years 2-3 hours, several times a week. Retired nurse and never had a sit down job. Could walk for hours in DC, just exploring.
Now I have to hold onto something when walking or I feel like I am falling. Not going out as often. Sliding sensation is mostly at home on LVP flooring and carpeting on stairs. I wear slipper socks at home. Referred to a neurologist and saw him after a 3 month wait. He has great reviews. At first he was encouraging, sure that I had an inherited condition, which I was sure I did not. 2nd visit, after lab work, he attributed it to SFN related to metabolic syndrome. He had just attended a conference. He then added ALA to the B12 prescribed by my primary. He didn’t even know if ALA was over the counter, so he sent an Rx to my pharmacy. Said he would see me in a year. I felt dismissed. Never even looked at my feet. I did research, and now take R-ALA 300 mg twice a day and B12 2000 mcg once a day. Not sure if I have been taking the supplements long enough to notice a difference. Research led me to toe spacers, toe exercises, Hoka Clifton shoes, floor based foot massager, open toe compression foot socks, and Bengay at night; Bengay for discomfort but not pain when going to bed. Actually, I bought the Hoka shoes before the numbness started, because my balance felt off. They are the only shoe I can wear now. Starting today, I am experimenting with a Zero Sunrise shoes as opposed to slipper socks in the house, to increase feeling in my feet. I have a purchased a Bob and Brad massage gun, but have not opened the box yet.
I am thinking of asking for a referral to a podiatrist to actually have my feet seen and suggestions for improving balance.
I welcome your experience and suggestions for what has worked for you.

Interested in more discussions like this? Go to the Neuropathy Support Group.

Profile picture for surechamp @surechamp

@johnbishop You mentioned balance exercises. Is there any I can find on Mayo Clinic site? Needing exercises for balance & neuropathy? Any help finding some simple balance exercises so appreciated. I’ve looked on other sites and haven’t found the right ones to fit my needs.

Jump to this post

@surechamp The Foundation for Peripheral Neuropathy had a webinar on balance exercises that you might want to view - https://www.youtube.com/watch.

Here's a slide show of exercises on the Mayo Clinic site - -- https://www.mayoclinic.org/healthy-lifestyle/fitness/multimedia/balance-exercises/sls-20076853.

REPLY
Profile picture for pann @pann

@allegheny I have had neuropathy that started after cancer treatment 10years ago. It started with the feeling like my socks were all bunched up under my toes & has gotten progressively worse. It has now progressed up to my ankles & balance is a problem but I am also 81 years have stenosis of the spine which I understand can contribute to neuropathy. But last years by evening my feet felt like they were on fire. My doctor put me on Duloxetine & almost immediately they were 98% better. I still have neuropathy, balance isn’t any better but I am much more comfortable at night & sleep has improved. I think everybody’s neuropathy can present differently it’s just finding what works for each of us. Good luck.

Jump to this post

@pann I was already on Cymbalta when I got neuropathy, so I don’t know if or how much it really helps. I’m so glad it helps you.

REPLY
Please sign in or register to post a reply.