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chaka67 avatar

Has anyone had Paget's disease of the vulva?

Gynecologic Cancers | Last Active: Apr 13 6:46am | Replies (231)
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Profile picture for bouf1948 @bouf1948

@naturegirl5 I’m so confused. I saw an oncologist/gynecologist Tuesday, and he wants to do surgery to remove the area March 2nd. He said he may have to also use a laser to get clear margins. He showed me pics of the area (which I hadn’t seen), and it’s a long swath going down close to the rectum. He wants me to spend the night in the hospital, since I also have leukemia and lymphoma, and a host of other problems. The hospital gets 2 stars. He was my second opinion. He’s a long way from my house, and it’s a teaching hospital, and I had to sign forms saying students may do some of the work. Okay, back to the first opinion, she is a mile from my house, no students helping, much better rated hospital - 4 stars. She is 34 years old, and she’s a gynecologist/oncologist, but I don’t think she’s ever seen this, even though she said she had. Can I get your opinion?

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Replies to "@naturegirl5 I’m so confused. I saw an oncologist/gynecologist Tuesday, and he wants to do surgery to..."
Helen, Volunteer Mentor | @naturegirl5 | Feb 20 12:12pm

@bouf1948 Since you are still on the fence about surgery I'd like to suggest that you ask both physicians a few more questions.

1) For the teaching hospital where you got the second opinion, the two stars isn't necessarily indicative of the surgeon's skills but more likely the hospital as a whole. I'd ask how often he has performed this surgery. This is a better indicator of his experience with this surgery.

2) For the four-star rated hospital with the gyn/oncologist I'd ask the same question. Has she seen this before? Has she performed this surgery and if yes, how often?

Here is a website that will help you to evaluate the two hospitals. This website, Health Locator, was built by Mayo Clinic and I hope will help you figure out where you would like to go:

-- https://www.healthlocator.org/

If you'd like to read the NewsFeed on Mayo Clinic Connect about this Health Locator, here is the article:

-- https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/find-the-best-quality-hospital-fast-free-and-with-confidence/

Will you let me know if Health Locator is helpful and what you decide to do?

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