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My cancer is back...

Gynecologic Cancers | Last Active: 2 days ago | Replies (76)

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Profile picture for Helen, Volunteer Mentor @naturegirl5

@mommacandy You've been on my mind lately as I was wondering if your recent cancer surveillance appointments continued to be NED for you.

I'm really glad you came back here to let us know what's going on . When I had a recurrence two years after my initial diagnosis (for me the initial diagnosis was endometroid adenocarcinoma, FIGO 1 Stage 1a, radical hysterectomy and no other treatment) I was far more frightened than the first time. My mind went to some dark places like you. It took a few weeks for additional tests , phone calls back and forth, and then radiation therapy was recommended. I did the radiation therapy and I chose to live in Rochester, MN for. weeks where Mayo Clinic is located and where I've been a patient . The local oncology care in the rural area where I live is, well, not all that good. I recall that initially you went to another state for your care too. So will you be traveling again for chemotherapy? It's all so disruptive and not at all what we planned on, right?

Thank heavens you listened to your body and insisted and insisted that something was not right. Finally, the CT scan confirmed just that.

We will continue our support for you. Go ahead and talk about your fears, your worries, anything that comes up for you. We take care of one another and we listen. And no judgement here.

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Replies to "@mommacandy You've been on my mind lately as I was wondering if your recent cancer surveillance..."

@naturegirl5 yes i will be traveling again the 4 hour trip...and simply because oncology care here sucks to put it nicely...remember they offered me comfort care when i was first diagnosed...for those who aren't familiar with my story...i had stage 3c ovarian and it was throughout my pelvis and abdomen.. i responded well to the chemo and multiple surgeries...i think by time i had the reconstruction surgery on my nose for the skin cancer that was removed there in Dec of 2024 i was up to 7 surgeries that year...it was rough esp losing my best friend through all that...i honestly think thats prob why i wasn't as scared ...because i was focusing on his cancer journey and mine was just "going along for the ride" so to speak...
maybe because its a reoccurance idk but this has definitely been more scary for me...but its like i told my care team there...i don't care if my numbers are still "normal range" something is wrong...i knew...and wanted something done asap...
its just strange feeling these weird feelings about it this time...i can't talk to anyone here about them...cause "i'm the strong one" and they would totally break down and i can't have that...